Innovate today
to treat better tomorrow
in the Caribbean

Our goals

To promote advances in the management of sickle cell disease and thalassemia, enhance the dissemination of knowledge, and support the training of healthcare professionals involved in the diagnosis and care of these blood disorders.

To foster partnerships that ensure equitable access to care and support the development of research projects contributing to new therapeutic advances.

News

10th REDAC Symposium

Le REDAC, Réseau d’Etude sur la Drépanocytose en Afrique Centrale, organise du 3 au 6 juin 2026 son 10ème symposium...

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5th Global Congress on Sickle Cell Disease (GSCDN)

The 5th Global Congress on Sickle Cell Disease, organized by the Global Sickle Cell Disease Network (GSCDN), was held from 3 to 6 June 2025 in Abuja, Nigeria, bringing together international stakeholders engaged in the fight against sickle cell disease, including clinicians, researchers, policymakers, patient associations, and institutional partners

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Sickle cell disease

What is sickle cell disease?
Sickle cell disease is a genetic disease caused by the transmission from father and mother, of a mutation of β-globin, which causes the presence of an abnormal hemoglobin. The term hemoglobinopathy encompasses sickle cell disease and thalassemias, which are both observed worldwide.

Curative treatments

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Key publications

Sickle cell disease in the Caribbean: progress in newborn screening, clinical care, and research through collaboration

Lancet Haematol 2023
Jennifer Knight-Madden 1, Monika Asnani 2, Lesley King 3, Marie-Dominique Hardy-Dessources 4

Newborn Screening for Sickle Cell Disease in the Caribbean: An Update of the Present Situation and of the Disease Prevalence.

Int J Neonatal Screen. 2019
Knight-Madden J, Lee K, Elana G, Elenga N, Marcheco-Teruel B, Keshi N, Etienne-Julan M, King L, Asnani M, Romana M, Hardy-Dessources MD.

CAREST--Multilingual Regional Integration for Health Promotion and Research on Sickle Cell Disease and Thalassemia.

Am J Public Health. 2016
Knight-Madden J, Romana M, Villaescusa R, Reid M, Etienne-Julan M, Boutin L, Elana G, Elenga N, Wheeler G, Lee K, Nieves R, Jones Lecointe A, Lalanne-Mistrih ML, Loko G, Keclard-Christophe L, Hardy-Dessources MD.

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