Innovate today
to treat better tomorrow
in the Caribbean
Our goals
To promote advances in the management of sickle cell disease and thalassemia, enhance the dissemination of knowledge, and support the training of healthcare professionals involved in the diagnosis and care of these blood disorders.
To foster partnerships that ensure equitable access to care and support the development of research projects contributing to new therapeutic advances.
News
📖 Voices of Sickle Cell
Under the leadership of Dr Edda Hadeed, a paediatrician in Antigua and Barbuda, this unique book brings together testimonies from individuals living with sickle cell disease, their families, healthcare professionals, and dedicated supporters.
See moreEngagement of the “relay runners for science” team: An act of solidarity during Emancipation Day commemorating the abolition of Slavery in Guadeloupe
The Relai inter-entrepise (RIE) is a relay race which is organized every 27th of May to commemorate the abolition of Slavery in Guadeloupe...
See moreCAREST network administration
Board Renewal - General Assembly According to its bylaws, CAREST is governed by a Board of Directors composed of 7 to 13 members,..
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Sickle cell disease
What is sickle cell disease?
Sickle cell disease is a genetic disease caused by the transmission from father and mother, of a mutation of β-globin, which causes the presence of an abnormal hemoglobin. The term hemoglobinopathy encompasses sickle cell disease and thalassemias, which are both observed worldwide.
Curative treatments
Carest keys numbers
Key publications

Sickle cell disease in the Caribbean: progress in newborn screening, clinical care, and research through collaboration
Lancet Haematol 2023
Jennifer Knight-Madden 1, Monika Asnani 2, Lesley King 3, Marie-Dominique Hardy-Dessources 4

Newborn Screening for Sickle Cell Disease in the Caribbean: An Update of the Present Situation and of the Disease Prevalence.
Int J Neonatal Screen. 2019
Knight-Madden J, Lee K, Elana G, Elenga N, Marcheco-Teruel B, Keshi N, Etienne-Julan M, King L, Asnani M, Romana M, Hardy-Dessources MD.

CAREST--Multilingual Regional Integration for Health Promotion and Research on Sickle Cell Disease and Thalassemia.
Am J Public Health. 2016
Knight-Madden J, Romana M, Villaescusa R, Reid M, Etienne-Julan M, Boutin L, Elana G, Elenga N, Wheeler G, Lee K, Nieves R, Jones Lecointe A, Lalanne-Mistrih ML, Loko G, Keclard-Christophe L, Hardy-Dessources MD.


