Innovate today
to treat better tomorrow
in the Caribbean
Our goals
To promote advances in the management of sickle cell disease and thalassemia, enhance the dissemination of knowledge, and support the training of healthcare professionals involved in the diagnosis and care of these blood disorders.
To foster partnerships that ensure equitable access to care and support the development of research projects contributing to new therapeutic advances.
News
5ᵉ Congrès mondial sur la drépanocytose (GSCDN)
Le 5ᵉ Congrès mondial sur la drépanocytose, organisé par le Global Sickle Cell Disease Network (GSCDN), s’est tenu du 3...
See more
20ème Conférence annuelle sur la drépanocytose et la thalassémie
Participation de CAREST à la 20ème Conférence annuelle sur la drépanocytose et la thalassémie La 20ème Conférence annuelle sur la...
See more
📖 Voices of Sickle Cell
Under the leadership of Dr Edda Hadeed, a paediatrician in Antigua and Barbuda, this unique book brings together testimonies from individuals living with sickle cell disease, their families, healthcare professionals, and dedicated supporters.
See more
Sickle cell disease
What is sickle cell disease?
Sickle cell disease is a genetic disease caused by the transmission from father and mother, of a mutation of β-globin, which causes the presence of an abnormal hemoglobin. The term hemoglobinopathy encompasses sickle cell disease and thalassemias, which are both observed worldwide.
Curative treatments
Carest keys numbers
Key publications
Sickle cell disease in the Caribbean: progress in newborn screening, clinical care, and research through collaboration
Lancet Haematol 2023
Jennifer Knight-Madden 1, Monika Asnani 2, Lesley King 3, Marie-Dominique Hardy-Dessources 4
Newborn Screening for Sickle Cell Disease in the Caribbean: An Update of the Present Situation and of the Disease Prevalence.
Int J Neonatal Screen. 2019
Knight-Madden J, Lee K, Elana G, Elenga N, Marcheco-Teruel B, Keshi N, Etienne-Julan M, King L, Asnani M, Romana M, Hardy-Dessources MD.
CAREST--Multilingual Regional Integration for Health Promotion and Research on Sickle Cell Disease and Thalassemia.
Am J Public Health. 2016
Knight-Madden J, Romana M, Villaescusa R, Reid M, Etienne-Julan M, Boutin L, Elana G, Elenga N, Wheeler G, Lee K, Nieves R, Jones Lecointe A, Lalanne-Mistrih ML, Loko G, Keclard-Christophe L, Hardy-Dessources MD.