Innovate today
to treat better tomorrow
in the Caribbean

Our goals

Communiquer sur les progrès réalisés dans la prise en charge de la drépanocytose et des thalassémies afin de favoriser une meilleure diffusion des informations et contribuer à une meilleure formation 
des professionnels de santé amenés à prendre ces pathologies  en charge.

Favoriser la mise en place de partenariats pour que les bénéfices de la prise en charge 
soient accessibles à tous et faciliter le développement de projets de recherche pour contribuer 
à de nouvelles avancées thérapeutiques.

News

Sickle cell disease

What is sickle cell disease?
Sickle cell disease is a genetic disease caused by the transmission from father and mother, of a mutation of β-globin, which causes the presence of an abnormal hemoglobin. The term hemoglobinopathy encompasses sickle cell disease and thalassemias, which are both observed worldwide.

Curative treatments

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Key publications

Sickle cell disease in the Caribbean: progress in newborn screening, clinical care, and research through collaboration

Lancet Haematol 2023
Jennifer Knight-Madden 1, Monika Asnani 2, Lesley King 3, Marie-Dominique Hardy-Dessources 4

Newborn Screening for Sickle Cell Disease in the Caribbean: An Update of the Present Situation and of the Disease Prevalence.

Int J Neonatal Screen. 2019
Knight-Madden J, Lee K, Elana G, Elenga N, Marcheco-Teruel B, Keshi N, Etienne-Julan M, King L, Asnani M, Romana M, Hardy-Dessources MD.

CAREST--Multilingual Regional Integration for Health Promotion and Research on Sickle Cell Disease and Thalassemia.

Am J Public Health. 2016
Knight-Madden J, Romana M, Villaescusa R, Reid M, Etienne-Julan M, Boutin L, Elana G, Elenga N, Wheeler G, Lee K, Nieves R, Jones Lecointe A, Lalanne-Mistrih ML, Loko G, Keclard-Christophe L, Hardy-Dessources MD.

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