{"id":6141,"date":"2026-01-14T15:40:18","date_gmt":"2026-01-14T19:40:18","guid":{"rendered":"https:\/\/carest-network.org\/?page_id=6141"},"modified":"2026-03-16T09:31:20","modified_gmt":"2026-03-16T13:31:20","slug":"shelter","status":"publish","type":"page","link":"https:\/\/carest-network.org\/en\/shelter\/","title":{"rendered":"SHELTER"},"content":{"rendered":"
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Shelter <\/h2>\t\t\t\t<\/div>\n\t\t\t\t
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\nSickle Cell Disease, Health management over Lifetime, Treatments, Epidemiology, Research<\/h2>\t\t\t\t<\/div>\n\t\t\t\t
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SHELTER is a regional cooperation project aimed at strengthening the response to sickle cell disease across the Caribbean region.\nIt is based on an integrated approach: improving the continuum of care throughout the life course of individuals affected by the disease; supporting training and the alignment of healthcare practices among healthcare professionals; establishing robust data systems to support governance and epidemiological monitoring; and fostering research collaboration to enhance the understanding of the disease and explore new therapeutic approaches.<\/p>

The project addresses all stakeholders involved \u2014 \nhealthcare professionals, patient associations, and research actors<\/b> \u2014 and aims to promote equal access to quality healthcare services across all participating territories.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t

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Governance & Partners<\/h2>\t\t\t\t<\/div>\n\t\t\t\t
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Lead Partner<\/h2>\t\t\t\t<\/div>\n\t\t\t\t
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CAREST
Caribbean Network of Researchers on Sickle Cell Disease and Thalassemia<\/h3>

CAREST coordinates the SHELTER project and plays a central role in advancing regional cooperation on sickle cell disease.\nDrawing on its extensive experience in Caribbean collaboration, CAREST ensures the coordination and effective implementation of the project\u2019s workstreams, led by a diverse range of public and private stakeholders.\n<\/p><\/div><\/div>\t\t\t\t<\/div>\n\t\t\t\t

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Main Community Partners<\/h2>\t\t\t\t<\/div>\n\t\t\t\t
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INSERM \u2013 UMR_S1134<\/h3>

The French National Institute of Health and Medical Research (Inserm) is the only French public research organisation entirely dedicated to human health. Within SHELTER, Inserm (UMR_S1134) contributes to the research workstream and particularly in advancing the understanding of sickle cell disease pathophysiology, while supporting the project\u2019s broader scientific collaboration at the regional level.\n\n<\/p><\/div><\/div>\t\t\t\t<\/div>\n\t\t\t\t

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Madr\u00e9pore\u2028
Non-profit association for care, organisation and research on sickle cell disease. <\/h3>

Madr\u00e9pore supports the training of healthcare professionals in sickle cell disease, red blood cell disorders and other rare diseases. The association contributes to the activities of the Transversal Sickle Cell Unit at the University Hospital of Pointe-\u00e0-Pitre \/ Abymes, the Rare Disease Reference Centre (French West Indies\u2013French Guiana), and, where relevant, the Rare Disease Coordination Platform in Guadeloupe.\nIt works to improve the reception and support of patients and their families, promotes public health and information initiatives, fosters collaboration with relevant associations and institutions, and may support research projects as well as the mobilisation of material and financial resources.\n\n\n<\/p><\/div><\/div>\t\t\t\t<\/div>\n\t\t\t\t

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Other Partners<\/h2>\t\t\t\t<\/div>\n\t\t\t\t
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University Hospital of Martinique<\/h3><\/div><\/div>\t\t\t\t<\/div>\n\t\t\t\t
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University Hospital of French Guiana<\/h3><\/div><\/div>\t\t\t\t<\/div>\n\t\t\t\t
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Caribbean Institute for Health Research (CAIHR) \u2014 Jamaica<\/h3><\/div><\/div>\t\t\t\t<\/div>\n\t\t\t\t
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Instituto de Hematolog\u00eda e Inmunolog\u00eda \u2014 Cuba<\/h3><\/div><\/div>\t\t\t\t<\/div>\n\t\t\t\t
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Tobago Regional Health Authority<\/h3><\/div><\/div>\t\t\t\t<\/div>\n\t\t\t\t
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Antigua & Barbuda Sickle Cell Association \u2014 Antigua<\/h3><\/div><\/div>\t\t\t\t<\/div>\n\t\t\t\t
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Ministry of Health Grenada<\/h3><\/div><\/div>\t\t\t\t<\/div>\n\t\t\t\t
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Saint Lucia Sickle Cell Association Sainte -Lucie <\/h3><\/div><\/div>\t\t\t\t<\/div>\n\t\t\t\t
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H\u00f4pital P\u00e9diatrique saint Damien (NOS PETITS FRERES ET S\u0152URS)  Ha\u00efti<\/h3><\/div><\/div>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t
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BUDGET<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t
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\n\t\t\t\t\tStrengthening the Caribbean response <\/span>\n\t\t\n\t\t\n\t\t\t\t\t\n\t\t\t\t