{"id":3027,"date":"2019-05-17T17:07:29","date_gmt":"2019-05-17T21:07:29","guid":{"rendered":"https:\/\/carest-network.org\/?page_id=3027"},"modified":"2026-03-18T09:58:46","modified_gmt":"2026-03-18T13:58:46","slug":"les-partenaires-2","status":"publish","type":"page","link":"https:\/\/carest-network.org\/en\/les-partenaires-2\/","title":{"rendered":"Les partenaires"},"content":{"rendered":"
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Les partenaires<\/h2>\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t
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Partenaires institutionnels<\/h2>\t\t\t\t<\/div>\n\t\t\t\t
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GR-Ex - inIdEx (Universit\u00e9 Paris Cit\u00e9)<\/a><\/h3>

Le GR-Ex (Biogenesis and Pathologies of the Red Blood Cell)<\/strong> est un programme de recherche interdisciplinaire port\u00e9 par l\u2019Universit\u00e9 Paris Cit\u00e9, en partenariat avec le CNRS et l\u2019Inserm, consacr\u00e9 \u00e0 l\u2019\u00e9tude de la biologie et des pathologies des globules rouges, notamment la dr\u00e9panocytose. Il vise \u00e0 f\u00e9d\u00e9rer des \u00e9quipes de recherche afin de d\u00e9velopper des approches innovantes en recherche fondamentale et translationnelle portant sur l\u2019h\u00e9matopo\u00ef\u00e8se, la physiologie du globule rouge et les strat\u00e9gies diagnostiques et th\u00e9rapeutiques des maladies h\u00e9matologiques.

\nLe programme s\u2019inscrit dans le cadre des Initiatives d\u2019excellence inIdEx 2025-2030<\/strong>, qui soutiennent des projets interdisciplinaires structurants pour une dur\u00e9e de six ans. \nPar son ancrage carib\u00e9en, le r\u00e9seau CAREST <\/strong>contribuera au d\u00e9veloppement de collaborations scientifiques entre \u00e9quipes europ\u00e9ennes et carib\u00e9ennes, <\/strong>favorisant le partage d\u2019expertises, la mise en place de projets de recherche conjoints et le renforcement des initiatives d\u00e9di\u00e9es \u00e0 la recherche et \u00e0 la prise en charge de la dr\u00e9panocytose dans la r\u00e9gion.<\/p><\/div><\/div>\t\t\t\t<\/div>\n\t\t\t\t

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Inserm \u2013 UMR-S 1134<\/a><\/h3>

Le partenariat avec l\u2019Institut national de la sant\u00e9 et de la recherche m\u00e9dicale, l\u2019Inserm,<\/strong> s\u2019inscrit dans le cadre des activit\u00e9s de l\u2019Unit\u00e9 mixte de recherche UMR-S 1134, implant\u00e9e en France hexagonale, \u00e0 La R\u00e9union et en Guadeloupe.
\nLes \u00e9quipes de cette unit\u00e9 contribuent \u00e0 am\u00e9liorer la compr\u00e9hension des m\u00e9canismes biologiques impliqu\u00e9s dans les maladies h\u00e9matologiques, notamment la dr\u00e9panocytose, et participent au d\u00e9veloppement de nouvelles approches diagnostiques et th\u00e9rapeutiques.

\nLe r\u00e9seau CAREST <\/strong>est n\u00e9 \u00e0 l\u2019initiative de chercheurs engag\u00e9s en Guadeloupe dans ces travaux, l\u2019Inserm constituant un partenaire cl\u00e9 pour accompagner et faciliter le d\u00e9veloppement scientifique et les collaborations du r\u00e9seau.<\/p><\/div><\/div>\t\t\t\t<\/div>\n\t\t\t\t

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Caribbean Institute for Health Research (CAIHR) Jama\u00efque<\/a><\/h3><\/div><\/div>\t\t\t\t<\/div>\n\t\t\t\t
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Instituto de Hematolog\u00eda e Inmunolog\u00eda \u2014 Cuba<\/h3><\/div><\/div>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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H\u00f4pital P\u00e9diatrique Saint Damien (Nos Petits Fr\u00e8res Et S\u0153urs) Ha\u00efti <\/a><\/h3>

L\u2019h\u00f4pital Saint Damien (Nos petits Fr\u00e8res et S\u0153urs)<\/strong>, Institution priv\u00e9e \u00e0 but non lucratif, est le seul h\u00f4pital p\u00e9diatrique en Ha\u00efti. Il re\u00e7oit un nombre important d\u2019enfants malades en situation d\u2019urgence et en suivi r\u00e9gulier. Mille deux cents (1200) enfants atteints d dr\u00e9panocytose sont connus et sont suivis r\u00e9guli\u00e8rement malgr\u00e9 la situation politique instable qui cr\u00e9e un climat s\u00e9curitaire et \u00e9conomique d\u00e9sastreux.<\/p><\/div><\/div>\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t

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Organisations Internationales de la dr\u00e9panocytose<\/h2>\t\t\t\t<\/div>\n\t\t\t\t
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Global Sickle cell Network<\/a><\/h3>

Sickle Global Network<\/strong>\u00a0est un r\u00e9seau international d\u00e9di\u00e9 \u00e0 la recherche, \u00e0 la coop\u00e9ration scientifique et \u00e0 l\u2019am\u00e9lioration de la prise en charge de la dr\u00e9panocytose \u00e0 l\u2019\u00e9chelle mondiale. Il rassemble chercheurs, cliniciens, institutions de sant\u00e9 et organisations de patients engag\u00e9s dans la lutte contre cette maladie g\u00e9n\u00e9tique du sang, particuli\u00e8rement pr\u00e9sente en Afrique, dans la Cara\u00efbe, en Europe et aux Am\u00e9riques.

\nLe r\u00e9seau favorise le\u00a0d\u00e9veloppement de collaborations scientifiques internationales, <\/strong> le partage de connaissances et la diffusion des bonnes pratiques en mati\u00e8re de d\u00e9pistage, de recherche clinique et de prise en charge des patients. Il contribue \u00e9galement \u00e0 structurer une communaut\u00e9 mondiale engag\u00e9e dans la compr\u00e9hension des m\u00e9canismes de la maladie et le d\u00e9veloppement de nouvelles approches th\u00e9rapeutiques.

\nLes \u00e9changes scientifiques sont notamment structur\u00e9s autour. Le\u00a0r\u00e9seau CAREST est repr\u00e9sent\u00e9 au sein de cette dynamique internationale depuis sa cr\u00e9ation,<\/strong>et a pris pris part aux diff\u00e9rentes \u00e9ditions du\u00a0Global Congress on Sickle Cell Disease, <\/strong>qui se sont tenues \u00e0\u00a0Accra (Ghana, 2010),\u00a0Rio de Janeiro (Br\u00e9sil, 2017),\u00a0Paris (France, 2022)\u00a0et\u00a0Abuja (Nigeria, 2025). <\/strong><\/p><\/div><\/div>\t\t\t\t<\/div>\n\t\t\t\t

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Sickle Cell Disease Coalition<\/a><\/h3>

Sickle Cell Disease Coalition (SCD Coalition)<\/strong>\u00a0est une alliance internationale d\u2019organisations engag\u00e9es dans l\u2019am\u00e9lioration de la prise en charge et de la reconnaissance de la dr\u00e9panocytose. Cr\u00e9\u00e9e aux \u00c9tats-Unis en\u00a02015<\/strong>, la coalition qui b\u00e9n\u00e9ficie du soutien administratif de l\u2019American Society of Hematology (ASH)<\/strong>, rassemble des associations de patients, des institutions m\u00e9dicales, des organisations de sant\u00e9 publique et des partenaires scientifiques afin de renforcer la coordination des actions men\u00e9es contre cette maladie g\u00e9n\u00e9tique du sang\nLa mission de la SCD Coalition est d\u2019amplifier la voix de la communaut\u00e9 des acteurs de la dr\u00e9panocytose<\/strong>, de promouvoir la sensibilisation et d\u2019am\u00e9liorer les r\u00e9sultats de sant\u00e9 des personnes vivant avec la maladie.

\nLe\u00a0r\u00e9seau CAREST a rejoint la coalition en 2024<\/strong>\u00a0et participe \u00e0 plusieurs groupes de travail internationaux\u00a0: Blood Donor Diversity,\u00a0Global Perspectives, Research & Clinical Trials\u00a0et\u00a0Sickle Cell Trait.<\/strong> Cette implication contribue \u00e0 renforcer les \u00e9changes scientifiques et associatifs et \u00e0 porter la voix des territoires carib\u00e9ens dans les initiatives internationales visant \u00e0 am\u00e9liorer la connaissance, la pr\u00e9vention et la prise en charge de la dr\u00e9panocytose.<\/p><\/div><\/div>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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Partenaires associatifs <\/h2>\t\t\t\t<\/div>\n\t\t\t\t
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Madr\u00e9pore\u00a0<\/h3>

Madr\u00e9pore\u00a0(Association pour la prise en charge, l\u2019organisation et la recherche sur la maladie dr\u00e9panocytaire) <\/strong>est une association cr\u00e9\u00e9e en\u00a02013\u00a0en Guadeloupe. Elle vise \u00e0 soutenir le d\u00e9veloppement des actions m\u00e9dicales, scientifiques et organisationnelles autour de la dr\u00e9panocytose et des maladies du globule rouge, en lien \u00e9troit avec les structures hospitali\u00e8res et les acteurs de sant\u00e9 du territoire.\u00a0
\nL\u2019association accompagne les projets de recherche, soutient la formation des professionnels de sant\u00e9 et contribue \u00e0 am\u00e9liorer l\u2019accueil des patients et de leurs familles. Elle m\u00e8ne \u00e9galement des actions d\u2019information et de sant\u00e9 publique visant \u00e0 mieux faire conna\u00eetre la dr\u00e9panocytose et \u00e0 renforcer les dispositifs de prise en charge sur le territoire.\u00a0
\nDans ce cadre,\u00a0Madr\u00e9pore collabore avec le r\u00e9seau CAREST <\/strong>et diff\u00e9rents partenaires scientifiques et associatifs\u00a0afin de soutenir la recherche, la formation et les initiatives r\u00e9gionales autour de la dr\u00e9panocytose, contribuant ainsi \u00e0 renforcer les liens entre recherche clinique, structures hospitali\u00e8res et initiatives de sensibilisation dans la Cara\u00efbe. <\/p><\/div><\/div>\t\t\t\t<\/div>\n\t\t\t\t

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Associations de patients <\/h2>\t\t\t\t<\/div>\n\t\t\t\t
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Associations de patients et de familles engag\u00e9e dans la lutte contre la dr\u00e9panocytose dans leurs territoire respectifs.
Elles m\u00e8nent des actions de sensibilisation, d\u2019\u00e9ducation \u00e0 la sant\u00e9 et d\u2019accompagnement des patients et des familles.<\/strong><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t

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Guadeloupe Espoir Dr\u00e9panocytose (GED)\u00a0<\/a><\/h3><\/div><\/div>\t\t\t\t<\/div>\n\t\t\t\t
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Dr\u00e9pano Doubout\u00a0- Guadeloupe<\/a><\/h3><\/div><\/div>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t
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Antigua & Barbuda Sickle cell association <\/a><\/h3><\/div><\/div>\t\t\t\t<\/div>\n\t\t\t\t
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Saint Lucia Sickle Cell Association<\/a><\/h3><\/div><\/div>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t
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Associations Carib\u00e9ennes<\/h2>\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t
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KARIB HORIZON<\/a><\/h3>

Karib Horizon est un\u00a0R\u00e9seau R\u00e9gional Multi-Acteurs (RRMA)<\/strong>\u00a0implant\u00e9 en Guadeloupe d\u00e9di\u00e9 au d\u00e9veloppement de la coop\u00e9ration internationale et de la solidarit\u00e9 au sein du bassin carib\u00e9en et des Collectivit\u00e9s Fran\u00e7aises d'Am\u00e9rique (CFA).\n
Ce r\u00e9seau rassemble une pluralit\u00e9 d\u2019acteurs, dont des organisations de la soci\u00e9t\u00e9 civile (Association, Entreprise, ESS), des Collectivit\u00e9s Territoriales,
des Institutions publiques autour d'objectifs communs :\u00a0Mettre en r\u00e9seaux les acteurs, optimiser les pratiques, f\u00e9d\u00e9rer les initiatives et renforcer la visibilit\u00e9 des projets \u00e0 l'\u00e9chelle locale et internationale.<\/strong><\/p><\/div><\/div>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t

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CORECA <\/a><\/h3>

Cr\u00e9\u00e9 en 1991 par quelques passionn\u00e9s des \u00e9changes, l'association Contacts et Recherches Cara\u00efbe (CO.RE.CA)<\/b> a vite pris ses marques sur le terrain de la coop\u00e9ration.\nElle r\u00e9pondait \u00e0 un besoin r\u00e9el d'insertion dans son espace naturel.\nA partir de sa philosophie la coop\u00e9ration populaire, le CO.RE.CA s'est investi dans les \u00e9changes, la culture et la solidarit\u00e9.\nL'association dispose maintenant d'un r\u00e9seau de correspondants dans la plupart des pays de la r\u00e9gion Cara\u00efbe.\nElle s'est associ\u00e9e \u00e0 la Caribbean Studies Association (CSA) afin de renforcer son ancrage r\u00e9gional.<\/b>\nElle a aussi multipli\u00e9 les partenariats locaux pour dynamiser les relations et conforter l'identit\u00e9 Cara\u00efbe.<\/p><\/div><\/div>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>","protected":false},"excerpt":{"rendered":"

Les partenaires Partenaires institutionnels GR-Ex – inIdEx (Universit\u00e9 Paris Cit\u00e9) Le GR-Ex (Biogenesis and Pathologies of the Red Blood Cell) […]<\/p>\n","protected":false},"author":45,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"elementor_theme","meta":{"site-sidebar-layout":"no-sidebar","site-content-layout":"","ast-site-content-layout":"full-width-container","site-content-style":"default","site-sidebar-style":"default","ast-global-header-display":"","ast-banner-title-visibility":"","ast-main-header-display":"","ast-hfb-above-header-display":"","ast-hfb-below-header-display":"","ast-hfb-mobile-header-display":"","site-post-title":"","ast-breadcrumbs-content":"","ast-featured-img":"disabled","footer-sml-layout":"","ast-disable-related-posts":"","theme-transparent-header-meta":"default","adv-header-id-meta":"","stick-header-meta":"","header-above-stick-meta":"","header-main-stick-meta":"","header-below-stick-meta":"","astra-migrate-meta-layouts":"set","ast-page-background-enabled":"default","ast-page-background-meta":{"desktop":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"ast-content-background-meta":{"desktop":{"background-color":"var(--ast-global-color-4)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"var(--ast-global-color-4)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"var(--ast-global-color-4)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"footnotes":""},"class_list":["post-3027","page","type-page","status-publish","hentry"],"yoast_head":"\nLes partenaires - 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