Monthly Archives: June 2015

Membership

The Association is composed of regular members, corresponding members, benefactors and honorary members.

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Treatments

Treatment usually includes a folic acid supplementation . Updating the immunization schedule ( pneumococcal , hepatitis B , influenza , etc.) and screening for complications are essential.

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Management of the disease

In 1990, the sickle cell disease was recognized by the sanitary departmental authorities, the priority of Public health and a program of all inclusive of care was set up under the responsibility of the first French-speaking integrated(joined) center for the sickle cell disease: the Center joined by the Sickle cell disease of Guadeloupe ( CIDG) […]

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Transmission

It is an autosomal recessive disease , that is to say, for the disease to appear , two copies of the mutated gene must be transmitted , one from the mother and one from the father. A child with two copies of the mutation is called homozygous SS.

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The Disease

The sickle cell disease is a genetic disorder caused by an abnormality of hemoglobin (Hb), the mutation in cause having been inherited at the same time from the father and from the mother. Hemoglobinopathies, mainly thalassemia and sickle cell disease are observed worldwide.

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Your membership allows

Your membership allows you to: Welcome doctors, French and foreign researchers at our events      To live the association to defend your case        Go to the member area      etc The bulletin “Info sickle cell ” an update on the progress of work in the world, gives practical advice , information on the activities […]

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Your membership is important to us

Your membership is essential to : Be informed of the scientific advances and life of the association:      Newsletters , news, …     Being invited to the Annual Meetings      Participate in the General Assembly ,      Be informed and prospective involvement in research protocols,     Etc. Be linked to other people affected by sickle […]

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Carest Overview

CAREST network (CAribbean network of REsearchers on Sickle cell disease and Thalassemia) is a Caribbean network of researchers and clinicians involved in the fight against sickle cell disease and thalassemia.

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Our goals

CAREST network objectives can be summarized into six keys actions: To promote quality care of persons with sickle cell disease and thalassemia as well as to their families, by publishing of clinical protocols or recommendations adapted to the level of development ofcountry/territory in the Caribbean; To promote the training of the health professionals to ensure optimal care […]

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